For those of you on Facebook, there’s a page called “On This Day” the shows select posts from a given day the entire time you’ve been on Facebook. I joined FB in 2007, when you still needed a college email address to join. Over the last several months, I’ve noticed something I probably should have paid more attention to as it was happening.
That I was documenting the symptoms of liver disease as far back as 2007, when I was at Rose State College.
- Dizzy spells
I had gone to several doctors (without insurance, mind you, so it was not an inexpensive endevour) seeking answers. All I got for my trouble were excuses, such as:
- That I could lose weight (usually suggested by a doctor who needed to lose a few lbs himself)
- That it was part of getting older (I was in my mid 40s when I was at Rose State)
- That I was a full time student trying to keep up with kids 20 to 25 years younger than me
- That I was premenupausal
So, I got discouraged and quit seeing doctors. If I wanted medical advice that didn’t serve my best interests, I’d just talk to my brother in law the GP. Or my sister who pretty much poo poo’d a lot of my symptoms as a bid for attention. Like I’d make shit like that up for attention…the bruises were/are real, the fatigue was/is real.
When I went to the hospital on February 11, 2014 thinking I was having a heart attack, then get diagnosed with fatty liver disease, I kinda felt vindicated. I knew there was something wrong and no one took me seriously; not even my own family!
Months later in 2014, when I threw up blood (which I actually took pictures of to show my sister. I ended up not needing them, so they were deleted), I think that’s when I started to be taken seriously. I had ascites (bloating in the abdomen), edema, and chronically low platelets (for which I got the first of many blood transfusions).
I got sick again in January of 2015, was hospitalized for my first pleural effusion, it was decided I needed to see a liver specialist.
All of this is documented on Facebook!
I didn’t do it for attention. I did it because after my first hospitalization in 2014, people were genuinely concerned for my well being.
Who knows where my health journey will take me next. As long as it’s not to a box in the ground, I can deal with the cards I’m dealt.
And besides, I want to be cremated.
But I plan on living a long time. This is just a plot twist in the Book of Stef.